Sunday, September 30, 2007

CelEBration ON THE PIER-Santa Monica

There were some awesome events that took place over this past weekend...

Kinerase Skincare presents...CelEBration on the Pier, a benefit for the EB Medical Research Foundation hosted by Courtney Cox and hubby David Arquette, took place in Santa Monica on Saturday. The EB Medical Research Foundation is a volunteer nonprofit foundation dedicated to the support of medical research of Epidermolysis Bullosa (EB), its causes, the development of successful treatments, and ultimately, its cure. Epidermolysis Bullosa is is a group of diseases characterized by blister formation after minor trauma to the skin. This family of disorders, most of which are inherited, range in severity from mild to the severely disabling and life-threatening diseases of the skin. This rare genetic disorder affects all ethnic and racial groups. Estimates indicate that as many as 100,000 Americans suffer from some form of EB. Please, please visit and learn more about this tragc disease. Here are some pics from the event....

l to rt: David Arquette & Courtney Cox, Camryn Manheim & son, Joley Fisher & family, and Holly Robinson Peete & family.
Photo Credit: WireImage


Anonymous said...

Such a fantastic cause. I'm a big supporter of DEBRA over here in Europe, it's great to see the profile of the condition being raised.

Gena said...

EBMRF and DebRA of America have connected to support "Walk a Mile in My Shoes" Relay-Rally for National Epidermolysis Bullosa Awareness Week - our EB community's first national awareness.

In 2006, after extensive lobbying, Congress and the Senate enacted this awareness week in perpetuity, so this is a very special time for the EB community - this is a rare disorder, and most people have no idea of its many painful challenges.

If you want to participate on the secondary roads of the Relay by walking, running, biking, or attending a Rally in support of our awareness objectives at one of the eight Rallies across America, please see and check out the legislation and website for further information.

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