Tuesday, October 2, 2007


Thanks Gena, for submitting the following....

EBMRF and DebRA of America have connected to support "Walk a Mile in My Shoes" Relay-Rally for National Epidermolysis Bullosa Awareness Week
The EB community's first national awareness. In 2006, after extensive lobbying, Congress and the Senate enacted this awareness week in perpetuity, so this is a very special time for the EB community - this is a rare disorder, and most people have no idea of its many painful challenges.If you want to participate on the secondary roads of the Relay by walking, running, biking, or attending a Rally in support of our awareness objectives at one of the eight Rallies across America, please see http://www.pr.com/press-release/39945 and check out the legislation and website, www.ebrelay.org for further information.

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